CANDLE’s second newsletter is out! Read to know more about our upcoming Persona Workshop with UNCAN-Connect and EU-CiP: The EU Cancer Information Portal Project, CANDLE participation in external events, media features, and more. Read the online version of the newsletter here. Subscribe to the newsletter to receive each installment. If you are already subscribed, please [...]
Joint statement from UNCAN-Connect, CANDLE and EU-CIP The European Commission has established two digital flagship projects under Europe’s Beating Cancer Plan and the EU Cancer Mission: UNCAN.eu and the European Cancer Patient Digital Center (ECPDC). The two platforms are designed to be interlinked in National Cancer Data Nodes (NCDNs), with the goal of ensuring cancer [...]
We are happy to co-organise the next Cancer Persona Webinar on 6 March 2026 with our synergy projects UNCAN-Connect and EU-CiP! Register https://emp.onl/cancerpersona What actors define the landscape of federated cancer research, National Cancer Data Nodes and cancer patient information? We will explore this in our persona workshop with the EU cancer stakeholder community. Why [...]
The Dutch National Cancer Data Node (NCDN-NL) brought together more than 40 experts from across the oncology, data, policy and innovation ecosystem for a full-day meeting dedicated to shaping the future of cancer data infrastructure in the Netherlands. The Dutch Node is one of the NCDNs CANLDE helps to establish. Senior representatives from Health-RI, IKNL, [...]
Yesterday, on November 26th, CANDLE held its first Persona Workshop with the EU cancer stakeholder community. This session aimed to build personas mapped to the functions of the National Cancer Data Nodes and the European Health Data Space context. The workshop was attended by 62 participants, all engaged in productive conversation. The workshop was organized [...]
CANDLE’s first newsletter is out! Read to know more about our Kick-off meeting, the upcoming Persona webinar, past and upcoming events, media features, and more. Check the online version out. Subscribe to the newsletter to receive each installment. If you are already subscribed but didn’t receive the newsletter in your email, please check your spam [...]
Carola Schulz (empirica) presented 18 November 2025 in the Webinar – Building Bridges in Digital Health Innovation: Data, Policy & People on National Cancer Data Nodes as instruments for privacy‑preserving cancer data sharing and their role in European digital health ecosystems Carola higlighted how National Cancer Data Nodes contribute to the three key topcis of [...]
On Tuesday, November 11, 2025 (09:00 – 17:00), the Netherlands Cancer Institute (NKI) was hosting a one-day symposium titled “cBioPortal – Making cancer data accessible for all”. The event was co-organized with Health-RI and the CANDLE project. Personalized cancer medicine increasingly depends on integrating clinical, molecular, imaging, and pathology data into a continuous learning health-care [...]
The CANDLE team spent two days at the EUnetCCC – European Network of Comprehensive Cancer Centres Annual Meeting in Paris, engaging deeply with cancer data stakeholders from across Europe. Learning from Stakeholders At our dedicated booth, stakeholders from multiple sectors highlighted the most impactful barriers to cancer data sharing across their home countries. Infrastructure fragmentation [...]
Sign up for the CANDLE and/or EU-CiP stakeholder engagement group!Jointly with our synergy project EU-CiP, we launched a registration form where stakeholders can sign up to engage with CANDLE, EU-CiP or both projects. This joint initiatives aims to value the time and energy of our stakeholders, by offering one single entry point for stakeholder engagement, [...]
Who will use and benefit from National Cancer Data Nodes? We will explore this in our persona workshop with the EU cancer stakeholder community. Why attend: Personas help put a face on the users of a service. We will apply this concept to help Member States build National Cancer Data Nodes that meet their users’ [...]
CANDLE will join the session “Data & Cybersecurity in Digital Health” session, 18 November 14:05-14:30 at the upcoming Webinar Building Bridges in Digital Health Innovation. Carola Schulz (empirica) will present on how National Cancer Data Nodes can contribute to FAIR and privacy-preserving cancer data sharing. SHINE 2Europe, as an active actor in the health innovation [...]
