On May 13, over 70 cancer data users and holders came together in our workshop to discuss needs, challenges, and priorities in cancer data use, with lively discussion and strong engagement throughout. This is important input to identify the core skills and technologies neede to establish the National Cancer Data Nodes. The CANDLE team is [...]
Without good metadata, cancer research infrastructures break. That’s why UNCAN-Connect and CANDLE jointly responded to the public consultation on the Implementing Act for Article 77 EHDS Regulation. As part of the EHDS, health data holders will be required to provide descriptions of their datasets to Health Data Access Bodies (HDABs). As Europe advances towards EHDS [...]
On 7 May, the European Commission (DG Sante and DG-RTD) and the CANDLE Project coordinated an event to explore potential mechanisms to integrate National Cancer Data Nodes (NCDNs) in the national implementation of the European Health Data Space regulation (EHDS). We brought together over 150 participants from the eHealth Network and the Health Data Access [...]
The CANDLE project was proudly represented at the EU Cancer Mission Conference and the third TEHDAS2 Stakeholder Forum, held in Nicosia, Cyprus, April 27-30, 2026. The EU Cancer Mission Conference ‘Understanding Cancer in the Digital Age: Data, Innovation, and Equity’ was held on April 27th, in person and online. The sessions explored the EU Cancer [...]
On March 6th, UNCAN-Connect, CANDLE, and EU-CIP held a joint Persona Workshop with the EU cancer stakeholder community. This session, following the first persona workshop CANDLE held in November, aimed to build another four personas mapped to the functions of the National Cancer Data Nodes and the European Health Data Space context. 45 participants were [...]
Help shape how cancer data is used across Europe! Are you a cancer data user (researcher, clinician, innovator, policymaker) or a data holder (registry, hospital, biobank, infrastructure, public authority)? We invite you to take part in a European survey contributing to the co-creation of recommendations and best practices for cancer data (re)utilisation – from data [...]
CANDLE’s second newsletter is out! Read to know more about our upcoming Persona Workshop with UNCAN-Connect and EU-CiP: The EU Cancer Information Portal Project, CANDLE participation in external events, media features, and more. Read the online version of the newsletter here. Subscribe to the newsletter to receive each installment. If you are already subscribed, please [...]
Joint statement from UNCAN-Connect, CANDLE and EU-CIP The European Commission has established two digital flagship projects under Europe’s Beating Cancer Plan and the EU Cancer Mission: UNCAN.eu and the European Cancer Patient Digital Center (ECPDC). The two platforms are designed to be interlinked in National Cancer Data Nodes (NCDNs), with the goal of ensuring cancer [...]
We are happy to co-organise the next Cancer Persona Webinar on 6 March 2026 with our synergy projects UNCAN-Connect and EU-CiP! Register https://emp.onl/cancerpersona What actors define the landscape of federated cancer research, National Cancer Data Nodes and cancer patient information? We will explore this in our persona workshop with the EU cancer stakeholder community. Why [...]
The Dutch National Cancer Data Node (NCDN-NL) brought together more than 40 experts from across the oncology, data, policy and innovation ecosystem for a full-day meeting dedicated to shaping the future of cancer data infrastructure in the Netherlands. The Dutch Node is one of the NCDNs CANLDE helps to establish. Senior representatives from Health-RI, IKNL, [...]
Yesterday, on November 26th, CANDLE held its first Persona Workshop with the EU cancer stakeholder community. This session aimed to build personas mapped to the functions of the National Cancer Data Nodes and the European Health Data Space context. The workshop was attended by 62 participants, all engaged in productive conversation. The workshop was organized [...]
CANDLE’s first newsletter is out! Read to know more about our Kick-off meeting, the upcoming Persona webinar, past and upcoming events, media features, and more. Check the online version out. Subscribe to the newsletter to receive each installment. If you are already subscribed but didn’t receive the newsletter in your email, please check your spam [...]
