CANDLE is a three-year EU-funded project (2025 – 2028) supporting Member States and Associated Countries in setting up National Cancer Data Nodes. These NCDNs will boost the reuse of cancer data for research, innovation and policy making, in order to improve diagnostics and treatment for cancer patients, as well as prevention and early detection for citizens not yet affected by the disease. Kickstarted by the implementation of the European Health Data Space, and building on national collaborative networks, NCDNs will provide researchers improved and cross border access to larger data sets of better quality.
CANDLE works in the context of two high level political initiatives that guide the European perspective on cancer research and health data:
The CANDLE project officially started on June 1 2025, with a kick-off meeting held on June 16-17, 2025.
Initial stakeholder mapping completed. The Advisory Board was established and the first meeting was held.
Preliminary analysis of the technological elements related to research data, software, and platforms relevant to regional and national nodes.
Stakeholder consultation and preliminary draft of best practices completed. Pilot NCDN maturation model event held, following the draft CANDLE maturation model presented in Month 10.
Preliminary analysis of the requirements for linkage between NCDNs and the ECPDC Patient Information Portal.
Analysis and production of an initial set of aspects to be considered in the context of national and regional cancer data nodes for their alignment with UNCAN.eu and ECPDC platforms completed.
Initial set of practices and recommendations to guide an EHDS-compliant development of NCDNs presented to relevant stakeholders.
Initial mapping of NCDNs skills based on the CANDLE Maturation Model completed.
Final policy recommendation held as an in-person workshop.
CANDLE Resource Kit available on the CANDLE website. Official end date of the 3-year CANDLE project.
22 September CANDLE kicked off its UNCAN.eu Network, bringing together 49 participants from 20 countries, from (future) National Cancer Data Nodes and beyond. The meeting surfaced two priorities for the Network work going forward:1. Make the UNCAN.eu Network generate value for the data holder and user communities. This will also addresses challenges in the cancer [...]
Jointly with UNCAN-Connect, we will put a special spotlight on cancer data holders and users in industry! Our joint webinar 13 October will engage industry stakeholders that are using and producing cancer data, in the context of emerging EU data infrastructures: UNCAN.eu, National Cancer Data Nodes, European Health Data Space. The webinar will – explore [...]
The CANDLE consortium actively contributed to the 3rd TEHDAS2 public consultation on six guidelines for Health Data Access Bodies and on diverse aspects of data use. In its reply, CANDLE broadly welcomed the draft guidelines as a solid and useful foundation and provided suggestions on how to make them more user-oriented and better adapted to real-world research workflows. Priorities included the need for [...]