National CAncer data
Node DeveLopErs

CANDLE is a three-year EU-funded project (2025 – 2028) supporting Member States and Associated Countries in setting up National Cancer Data Nodes. These NCDNs will boost the reuse of cancer data for research, innovation and policy making, in order to improve diagnostics and treatment for cancer patients, as well as prevention and early detection for citizens not yet affected by the disease. Kickstarted by the implementation of the European Health Data Space, and building on national collaborative networks, NCDNs will provide researchers improved and cross border access to larger data sets of better quality.

Consortium

Context

CANDLE works in the context of two high level political initiatives that guide the European perspective on cancer research and health data:

EU initiatives on Cancer

European Health Data Space

Project Timeline

June 2025
Project Month 1
CANDLE Project Start

The CANDLE project officially started on June 1 2025, with a kick-off meeting held on June 16-17, 2025.

November 2025
Project Month 6
Stakeholder Engagement

Initial stakeholder mapping completed. The Advisory Board was established and the first meeting was held.

February 2026
Project Month 9
Technological Element Analysis for NCDNs

Preliminary analysis of the technological elements related to research data, software, and platforms relevant to regional and national nodes.

May 2026
Project Month 12
Stakeholder Consultation and NCDN Maturation Model Piloting

Stakeholder consultation and preliminary draft of best practices completed. Pilot NCDN maturation model event held, following the draft CANDLE maturation model presented in Month 10.

August 2025
Project Month 15
Requirements Analysis

Preliminary analysis of the requirements for linkage between NCDNs and the ECPDC Patient Information Portal.

November 2026
Project Month 18
Initial Aspects to Be Considered for Regional and National Data Nodes

Analysis and production of an initial set of aspects to be considered in the context of national and regional cancer data nodes for their alignment with UNCAN.eu and ECPDC platforms completed.

February 2027
Project Month 21
Practices and Recommendations for EHDS-Compliant Development of NCDNs

Initial set of practices and recommendations to guide an EHDS-compliant development of NCDNs presented to relevant stakeholders.

May 2027
Project Month 24
NCDN Skill Mapping

Initial mapping of NCDNs skills based on the CANDLE Maturation Model completed.

March 2028
Project Month 34
Final Policy Recommendations

Final policy recommendation held as an in-person workshop.

May 2028
Project Month 36
CANDLE Resource Kit and Project End

CANDLE Resource Kit available on the CANDLE website. Official end date of the 3-year CANDLE project.

Synergy projects

Latest news

22 September CANDLE kicked off its UNCAN.eu Network, bringing together 49 participants from 20 countries, from (future) National Cancer Data Nodes and beyond. The meeting surfaced two priorities for the Network work going forward:1. Make the UNCAN.eu Network generate value for the data holder and user communities. This will also addresses challenges in the cancer [...]

Jointly with UNCAN-Connect, we will put a special spotlight on cancer data holders and users in industry! Our joint webinar 13 October will engage industry stakeholders that are using and producing cancer data, in the context of emerging EU data infrastructures: UNCAN.eu, National Cancer Data Nodes, European Health Data Space. The webinar will – explore [...]

The CANDLE consortium actively contributed to the 3rd TEHDAS2 public consultation on six guidelines for Health Data Access Bodies and on diverse aspects of data use.   In its reply, CANDLE broadly welcomed the draft guidelines as a solid and useful foundation and provided suggestions on how to make them more user-oriented and better adapted to real-world research workflows. Priorities included the  need for [...]