CANDLE is a three-year EU-funded project (2025 – 2028) supporting Member States and Associated Countries in setting up National Cancer Data Nodes. These NCDNs will boost the reuse of cancer data for research, innovation and policy making, in order to improve diagnostics and treatment for cancer patients, as well as prevention and early detection for citizens not yet affected by the disease. Kickstarted by the implementation of the European Health Data Space, and building on national collaborative networks, NCDNs will provide researchers improved and cross border access to larger data sets of better quality.
CANDLE works in the context of two high level political initiatives that guide the European perspective on cancer research and health data:
On May 13, over 70 cancer data users and holders came together in our workshop to discuss needs, challenges, and priorities in cancer data use, with lively discussion and strong engagement throughout. This is important input to identify the core skills and technologies neede to establish the National Cancer Data Nodes. The CANDLE team is [...]
Without good metadata, cancer research infrastructures break. That’s why UNCAN-Connect and CANDLE jointly responded to the public consultation on the Implementing Act for Article 77 EHDS Regulation. As part of the EHDS, health data holders will be required to provide descriptions of their datasets to Health Data Access Bodies (HDABs). As Europe advances towards EHDS [...]
On 7 May, the European Commission (DG Sante and DG-RTD) and the CANDLE Project coordinated an event to explore potential mechanisms to integrate National Cancer Data Nodes (NCDNs) in the national implementation of the European Health Data Space regulation (EHDS). We brought together over 150 participants from the eHealth Network and the Health Data Access [...]
