Yesterday, on November 26th, CANDLE held its first Persona Workshop with the EU cancer stakeholder community. This session aimed to build personas mapped to the functions of the National Cancer Data Nodes and the European Health Data Space context. The workshop was attended by 62 participants, all engaged in productive conversation.
The workshop was organized by the WP5 co-lead, Empirica, and chaired by Carola Schulz. CANDLE co-coordinator Lifang Liu of Health-RI held the first presentation of the day, introducing the CANDLE project to our attendees. Johanna Anttila of FICAN, WP2 lead, gave a talk on the National Cancer Data Nodes, what they mean, and defining NCDN users.
The heart of the workshop was the persona creation session. After an introduction to the persona concept, the workshop participants separated for a discussion into four breakout rooms: Research Organizations, moderated by Griselda Marku (empirica); Cancer Registry, moderated by Sukumar Munshi (Charite); Patients, moderated by Jack Latteur (ECO); Research Infrastructures, moderated by Carola Schulz (empirica). In each breakout room, participants identified the goals, pain points, needs, and skills of each persona, building a comprehensive view of each persona representative.
Check out the workshop recording and slidedeck.
We thank everyone for joining and contributing to this session!
