Stakeholder Engagement Group

We invite you to sign up for our Stakeholder Engagement Group to help us build National Cancer Data Nodes.

Whom are we looking for?

  • Cancer patients and survivor organisations
  • Healthcare professionals and public health bodies
  • Cancer registries and research centres
  • Research infrastructures and standardisation bodies
  • Policymakers and EU-funded projects
  • Education institutions, digital infrastructure providers
  • Industry (e.g. Medtech, Pharma)

Why should you join?

You’ll help us shape key project outcomes, such as

  • Identifying barriers and needs related to data reuse
  • Design of the CANDLE Resource Kit
  • Alignment with the European Health Data Space (EHDS)
  • Ensuring the sustainability and adoption of solutions across Member States

How will we engage?

We will invite you to

  • Stakeholder Fora: for deep dialogue and structured feedback
  • Workshops: input to e.g. cancer data persona, cancer data sharing use cases, training resources, CANDLE resource kit
  • Open Days: to showcase our tools
  • Interviews and surveys: to validate our findings